You all have no clue how honored I am to be able to share my story with you all. Having JM has given me so many opportunities that I would have never been able to have if I wouldn't have gotten sick. For starters I want to thank the Cure JM community for everything! The website they have is so informative and has helped my family and I connect with so many other JM families.
Knowing that there were other families out there going through the same thing mine was was somewhat comforting. Like I mentioned in my last blog I found that this disease was neither a punishment or a burden, but instead it gave me purpose. I knew that I had to fight this disease and that I could never give up no matter what. I knew that I had to push myself and keep even if it seemed impossible. So the first step for me was getting back out into the public as much as I could.
My first opportunity was my boyfriends Senior Prom and boy was I nervous. Prom is a very special night for many, especially a 17 year old girl but I was FREAKING OUT because I could barley sit up in bed much less go out to dinner and then to a dance, or so I thought. My mom went back and fourth about 6 times trying to find the PERFECT dress for me to wear and let me tell you, she did a great job! I had lost about 50 pounds since the last time I had to wear anything other than pajamas so it was tricky trying to find out what size I was. Once we found the dress I was still not sure if I wanted to go but Connor, my very loving and caring boyfriend was going to make sure that I went and had a great time. It was his senior prom after all.
Well we went out and had dinner and when we got to the dance and I saw all of my friends I was so afraid. What were they all going to think of me. What were they going to say. I could not go to school at the time so many of these people did not even know anything was wrong with me. Well I was so wrong to be afraid because when we got there everyone just told me how great it was that I was there and how much they all missed me. I had a great night and that was the night that I realized that I was going to be okay and that there were many great days ahead of me.
My family always does there best to help me be as normal as possible but sometimes it is hard. I will be the first one to tell you that none of this has been easy but my family being there for me has been a big part of my recovery. I wouldn't be able to do anything if it weren't for them. When they say it takes a village to raise a child they aren't lying. I guess what Im trying to say is that I do not want people to think that I have gotten to where I'm at today all on my own. At every obstacle my family and friends have been there for me and that has been a blessing all on its own.
My life, with its up and downs, has been a great one so far and I know that I always have family and friends to fall back on. If you take a look into your life do you find that you thank the ones who love and care for you enough? And Im not just talking to younger people either. We all have someone in our lives who is there to help us, even if they show it in a strange way. So take a moment to reflect on you life and the people in it. Do something special and do not expect anything in return. Tell them you love them and show them how much you care. You never know how much it can mean to them.
God bless,
Callie
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